The UK Multiple Sclerosis Tissue Bank

The UK Multiple SclerosisTissue Bank
Welcome Introduction How to register as a tissue donor Raising awareness of all those affected by MS Donation of Tissue Requesting tissue for research on multiple sclerosis Promoting the Tissue Bank in the research community The Bank Statement Issue One Issue Two Issue Three Articles MS Matters Insight - Banking on the future MS Frontiers - A very special bank MS Frontiers - Making a very special contribution Links: Department of Cellular and Molecular Neuroscience Department of Neuropathology Multiple Sclerosis Society of Great Britain and Northern Ireland International Federation of Multiple Sclerosis Societies E-mail: ukmstissuebank@imperial.ac.uk	the Bank Statement News from The UK Multiple Sclerosis Tissue Bank . (The Bank Statement is also available as a PDF document.) ISSUE 3 Welcome to the third issue of our newsletter. Whether you are already a registered donor; or, in the process of deciding whether it is right for you; or you are the relative or friend of someone who has donated tissue, we hope that our Bank Statement will keep all of you informed with what is going on here at the Tissue Bank. In this issue we are pleased to report on: how well the Tissue Bank is meeting its two overall aims 6 research projects supported by the Tissue Bank the Tissue Bank's updated website our new emergency donor line number - 07659132045 the things we would like you to tell us The Tissue Bank acts as two things: a facility for all those people (those with MS and those without the condition) who want to donate their brain and spinal cord to research; and, a resource for those scientists able to use samples of tissue in their research on the cause and treatment of MS. We now describe how well we have been addressing these aims over the last 7 years that the Tissue Bank has been operating from the Charing Cross Campus of Imperial College London under the directorship of Professor Richard Reynolds: a facility for those wanting to donate tissue to research The most effective way of raising the profile of the Tissue Bank and of recruiting individuals on to its prospective donor scheme remains to be one of publishing articles in MS Matters. For example, the July/August 2004 issue carried an interview of Professor Reynolds and Dr Vora. This article alone resulted in 987 requests for more information and 336 individuals subsequently registering on the donor scheme. This brings the total number of Information Packs supplied since we began operations in 1998 to 4,180. The blue line in the graph above shows how the number of Packs distributed has grown over the last seven years. The graph also shows the accumulation of people who have registered on the donor scheme over this time - the total number who have registered since 1998 is 2,673. page 1 page 1/ page 2/ page 3/ page 4/ /page 5
	The UK Multiple Sclerosis Tissue Bank Division of Neuroscience and Mental Health Imperial College London Charing Cross Campus Fulham Palace Road London W6 8RF Tel: 020 8846 7324 Fax: 020 8846 7500 E-mail: ukmstissuebank@imperial.ac.uk
*The UK Multiple Sclerosis Tissue Bank is funded by the Multiple Sclerosis Society of Great Britain and Northern Ireland, registered charity 207495.*