The UK Multiple Sclerosis Tissue Bank

The UK Multiple SclerosisTissue Bank
Welcome Introduction How to register as a tissue donor Raising awareness of all those affected by MS Donation of Tissue Requesting tissue for research on multiple sclerosis Promoting the Tissue Bank in the research community The Bank Statement Issue One Issue Two Issue Three Articles MS Matters Insight - Banking on the future MS Frontiers - A very special bank MS Frontiers - Making a very special contribution Links: Department of Cellular and Molecular Neuroscience Department of Neuropathology Multiple Sclerosis Society of Great Britain and Northern Ireland International Federation of Multiple Sclerosis Societies E-mail: ukmstissuebank@imperial.ac.uk	the Bank Statement News from The UK Multiple Sclerosis Tissue Bank . (The Bank Statement is also available as a PDF document.) ISSUE 1 Welcome to our first newsletter, designed with you in mind. Some of you will have already registered as donors, while others will be in the process of deciding whether it is right for you; or may be, you are the relative or friend of someone who has donated tissue. We hope that our Bank Statement will keep all of you up to date with what is going on here at the Tissue Bank. In this issue find out about... the aims of the Tissue Bank the ways in which the Tissue Bank is raising its profile the number of people that have registered as donors fulfilling the wishes of those who have already contributed to research the research that is using tissue donated to the Tissue Bank our new telephone numbers and your new donor card the things we would like you to tell us about What does the tissue bank do? In 1998, the Multiple Sclerosis Society awarded a 5-year grant to Imperial College School of Medicine at Charing Cross Hospital in London to enable the setting-up of a national MS Tissue Bank. The aim of this centralised facility is: to co-ordinate the collection of tissue donated for MS research from people that had MS and from people that did not have MS, and to distribute samples of the tissue to scientists conducting research into the causes and treatment of MS. The Tissue Bank makes available high quality samples of tissue for research into multiple sclerosis. Letting people know about our work Since the very beginning of setting-up this brand new facility, we have felt it important to share with everyone interested in multiple sclerosis the work of the Tissue Bank and the fundamental importance of tissue banking to research. We want people to have all the information they might need to decide on an individual basis whether becoming a donor is right for them. Over the last three years we have raised our profile by: giving talks at over 50 local branches of the MS Society publishing articles and letters in the MS Society's MS Matters and TeaMSpirit, presenting our work at conferences for specialist MS Nurses having our articles published in specialist and general healthcare newsletters writing individually to each of the 484 neurologists working in the UK page 1 page 1/ page 2/ page 3/ page 4
	The UK Multiple Sclerosis Tissue Bank Division of Neuroscience and Mental Health Imperial College London Charing Cross Campus Fulham Palace Road London W6 8RF Tel: 020 8846 7324 Fax: 020 8846 7500 E-mail: ukmstissuebank@imperial.ac.uk
*The UK Multiple Sclerosis Tissue Bank is funded by the Multiple Sclerosis Society of Great Britain and Northern Ireland, registered charity 207495.*